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 "Brown Bag For A Cure"

Make A Difference

Support Pediatric Brain Tumor Research

This is an excerpt from an essay written by a college student, Haley Peterson. Haley was diagnosed at age 5 with Neuroblastoma. She relapsed in 2006 at age 17. She fights this monster, cancer everyday.

According to the Centers for Disease Control and Prevention, childhood cancer is the leading cause of disease related deaths in the US and it kills more children per year than cystic fibrosis, muscular dystrophy, asthma, and AIDS combined. Every day, researchers are getting closer and closer to discovering a cure for cancer, but for the families of those who don’t survive their disease, every day is one day too late.

For a little boy named Julian Avery today is two months and nineteen days too late. Julian passed away on January 19, 2008 at the age of four from a brain tumor called medulloblastoma. The tumor was found in March of 2007 and a few days after the initial CT scan that found the tumor, King JuJu as he was affectionately called, had brain surgery to completely remove the tumor. He then had six weeks of daily radiation treatments to his brain and after a four week break he began chemotherapy.


While still on treatment, scans revealed that the tumor had returned and that Julian had run out of options. “Take him home and love him” was what the doctors probably told his mother Mimi. After Julian’s body slowly went paralyzed from his feet all the way up his body from growth of the tumor, he still fought on. Eventually though, the beast overcame him and killed him. King JuJu took his last breath at 11:22 am on January 19, 2008.

If there had been enough funding for childhood cancer research, Julian Avery might still be here fighting or enjoying remission. He isn’t, though. With more funding for childhood cancer research, better and more effective treatments can be discovered. Without the money, children will still die from these terrible illnesses.


I am writing this persuasive essay on the need to increase funding for childhood cancer research because I know of far too many children in need of better treatments and essentially a cure for their disease. I could list hundreds, but to name a few, here are some kids who are fighting every day: Coleman Larson, Matthew Epp, Austin Melgar, Bailey Spoonhower, Emily Adamson, Colleen Moore, Autumn Lawrence, Cody Robinson, Cole Kaspar, Kennedy Garcia, and John Eric Bartels. There are so many more I could easily name; those are only a small handful.

Something needs to be done, someone needs to do something.

 


This is King JuJu

 

 

What Would You Do?

What does it feel like to be... locked in your own body.

What does it feel like to.... not be able to speak, walk  without assistance, see or swallow, while still having cognitive abilities and thoughts.

What does it feel like to
....wake everyday and experience the sensation of losing the use of a finger, toe, or limb at a pace that shuts down your entire body within weeks.

What does it feel like....to be trapped, without hope or without a lifeline to the outside world around you.

Wh
at if....you are five years old.

Brain tumors affect the most innocent of all victims, children who want to grow up and dream of a future. It strikes with little warning and no mercy. Often, by the time a diagnosis is made, it is already too late. There are often no options. Why? There is no cure.

There are over 120 different types of brain tumors. Brain tumors have no socio-economic boundaries and do not discriminate among gender or ethnicity. There are currently no know causes of brain tumors.

3,500 children are diagnosed with some form of a brain tumor every year in this country. 40% or 4 out of 10 of these children will die. 75% are under the age of 15.

Cancer kills more children than asthma, diabetes, cystic fibrosis and AIDS. Brain tumors are the most deadly of all childhood cancers.

Brain tumor research is underfunded and the public remains unaware of the magnitude of this disease. The cure rate for most brain tumors is significantly lower than for many other types of cancer.

We must work to change this. Our most precious commodity, our children are counting on us. Together we can and will make a difference.